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Prevent Cancer Advocacy Workshop

2020 Prevent Cancer Advocacy Workshop

Genetics, Genomics and Biomarker Testing

September 9, 2020

Executive Summary

The Prevent Cancer Foundation hosted its annual Advocacy Workshop on Wednesday, September 9, 2020 with a focus on genetics and cancer prevention. The afternoon was full of great conversations about genetic testing and its role in helping identify hereditary conditions and their associated cancers, as well as providing tumor testing to develop targeted treatments for patients. Access barriers to testing were a recurrent theme throughout the event. To address those barriers, attendees joined breakout sessions to discuss potential solutions and reported back to share with the entire group.

If you were unable to join us, the entire program was recorded and is available here. 

The materials below will provide you with additional information about topics discussed in the Workshop:

Speaker Bios and Information
View additional information about the speakers from the 2020 Workshop.

Genetics and Genomics 101
Use these slides to follow along with Mrs. Hampel’s presentation.

Genetic Testing Terminology
For more information on the pan cancer initiative that focuses on increasing adoption of consistent, common testing terms for patient education, please visit www.commoncancertestingterms.org. You will find the white paper from above on the issue and recommended terms, an infographic, an HCP education card, as well as the ASCO 2020 abstract published in May.

PSA on Biomarker Testing
Guardant Health is harnessing the power of blood to change the trajectory of cancer and making advances that move us closer to a blood test that screens for cancer. We hope you enjoy this informational video about the company and their mission to conquer cancer with data. Please feel free to contact us if you have any follow-up questions about the webinar or Guardant Health.

For questions about the Workshop, contact Lisa Berry Edwards at Lisa.Edwards@preventcancer.org or 703-519-2107. 

Prevent Cancer Advocacy Workshop 2020

“Genetics, Genomics and Biomarker Testing”

Virtual Workshop Agenda

September 9, 2020

The workshop will serve as a forum for patients, providers, advocacy organizations and other stakeholders to engage in a dialogue around issues regarding genetic testing for hereditary cancers, somatic mutations and biomarkers. Attendees will leave with a better understanding of the role these factors play in prevention and early detection and solutions to improve patient awareness and engagement. 

12:30 pm | Welcome and Overview

12:40 pm | Genetics/Genomics 101

Heather Hampel, Associate Director, Division of Human Genetics; Associate Director, Biospecimen Research; Professor, Internal Medicine; Licensed Genetic Counselor
The Ohio State University Comprehensive Cancer Center

This primer will give attendees the background needed to understand the components of genetics and what it means for cancer patients.

1:10 pm | Brief break and transition to panel discussion

1:15 pm | Panel Discussion: Access Barriers and Challenges Impacting Genomics, Genetic Testing and Biomarker Testing

As innovation in genetics has led to major breakthroughs in screenings, patients can learn so much about their genetic profile and cancer type. However, these screenings are not available or understandable to all. Panelists will discuss pressing concerns regarding hereditary cancers, tumor profiling and biomarkers and the practical impact they have on patients.

Moderator: Lisa Schlager, Vice President, Public Policy, Facing Our Risk of Cancer Empowered

Panelists:

Heather Hampel, Associate Director, Division of Human Genetics; Associate Director, Biospecimen Research; Professor, Internal Medicine; Licensed Genetic Counselor
The Ohio State University Comprehensive Cancer Center

Jennifer R. Leib, Founder, Innovation Policy Solutions, LLC

Nikki Martin, Director of Precision Medicine Initiatives, LUNGevity

Becky Nagy, Vice President of Medical Affairs, Guardant Health, Inc.

Brandi Preston, Founder, Kamie K. Preston Hereditary Cancer Foundation

 2:25 pm | Break and transition to breakout sessions

 2:40 pm | Breakouts

Attendees will break out into pre-assigned groups to discuss concerns addressed by the speakers, brainstorm ideas and propose solutions. *Note – all sessions will be recorded, so attendees can hear discussions from other breakouts.

 3:25 pm | Report outs and voting

Breakout groups will return to present their proposed solutions, and attendees will vote on the ideas on which to focus our collective efforts.

 4:15 pm | Recap and next steps

 4:30 pm  | Adjourn

Thank you to our 2020 Advocacy Workshop sponsors!

Pfizer

Daiichi Sankyo

Genentech

 

 

Guardant

 

 

Novartis  

Foundation Medicine

2019 Prevent Cancer Advocacy Workshop

April 24, 2019
Hilton Crystal City
Arlington, VA

The Prevent Cancer Advocacy Workshop is an annual conference that convenes stakeholders to discuss pressing issues that impact cancer prevention and early detection, as well as novel approaches to address these issues through policy and advocacy. The Workshop is an open forum that allows participants to immerse themselves in engaging presentations and facilitated conversations, and to build capacity for creative solutions through collaboration with other attendees. 

Wednesday, April 24, 2019

9:30 am | Registration Opens

10:30 am | Welcome — Jody Hoyos, Senior Vice President, Prevent Cancer Foundation

10:35 am | Overview — Lisa Berry Edwards, Managing Director, External Affairs, Prevent Cancer Foundation

10:45 am | Keynote — Inside the Case Against Big Tobacco
Speaker:  Sharon Eubanks, Lead Counsel, United States v. Phillip Morris USA

11:30 am | Access Barriers in Care Delivery
Panelists will discuss emerging barriers to care and potential solutions to increase access to patients, such as step therapy, co-pay accumulators, Medicaid waivers, and more.
Moderator:
Chad Ramsey – Vice President of Policy, Ovarian Cancer Research Alliance
Panelists:
Lindsay Houff – Senior Policy Manager – National Coalition for Cancer Survivorship  
Anna Hyde – Vice President of Advocacy and Access, Arthritis Foundation  
Kristen Santiago – Senior Director of Public Policy Initiatives, LUNGevity  

12:30 pm | Networking Lunch                     

1:30 pm | The Economics of Prevention  
Listen to a facilitated conversation focusing on factors contributing to the rising cost of health care and ways in which prevention can offset those costs to reduce the burden on patients and the health care system.
Facilitator:
Jim Mulshine, Vice President and Associate Provost for Research at Rush University Medical Center
Guest Speaker:
Bruce Pyenson, Principle and Consulting Actuary, Milliman, Inc. 

2:30pm | Prevent Cancer Advocacy Toolkit
Taylor Patton
– Director, Policy and Advocacy, Prevent Cancer Foundation                                

2:45pm | Workshop Recap and Next Steps

3:00pm | Adjourn

The Foundation held its annual Advocacy Workshop on Wednesday April 11, 2018, where participants heard from advocates, policy experts, patient navigators and researchers about the issues barring minorities and other underserved populations from accessing quality health education and care.

Panelists addressed issues facing these communities, not just for those affected by cancer, but for those affected by chronic conditions like diabetes, heart disease and arthritis. The panelists see many of the same issues affecting health disparities, such as access to transportation, child care and other resources that patients need to get to appointments. They also discussed a need for better patient-provider communication and called on insurers to help patients understand their coverage.

View keynote address slide presentation: Culturally Tailored Approaches to Address Health Inequities and Disparities: The Racial and Ethnic Approaches to Community Health (REACH) Initiative – April Bankston, Senior Public Health Advisor, Division of Nutrition, Physical Activity, and Obesity, CDC

Agenda for the 2018 Advocacy Workshop

Welcome and Opening Remarks
Carolyn Aldigé, President and Founder, Prevent Cancer Foundation

Workshop overview
Taylor Patton, Director, Advocacy and Policy, Prevent Cancer Foundation 

Panel 1: Health Disparities in Chronic Disease Prevention

Moderator:
Deanna Darlington, Director, Patient Advocacy and Allied Development, Amgen

Panelists:
LaShawn McIver, Senior Vice President, Government Affairs & Advocacy – ‎American Diabetes Association
Jennifer Jabson, Assistant Professor, University of Tennesee – Knoxville
Elizabeth Glidden, Patient Navigator, American Cancer Society, Northeast Region

Lunch Keynote
April Bankston, Team Lead, Racial and Ethnic Approaches to Community Health (REACH) Program, Centers for Disease Control and Prevention

Panel 2: Policy Solutions to Address Threats in Chronic Disease Prevention

Moderator:
Jack Rayburn, Senior Government Relations Manager, Trust for America’s Health

Panelists:
Elizabeth Franklin, Executive Director, Cancer Policy Institute, Cancer Support Community

Anna Hyde, Vice President, Advocacy and Access, Arthritis Foundation
Katie Berge, Government Relations Manager, American Heart Association 

Join now to keep up with the latest in cancer prevention and early detection