The Prevent Cancer Advocacy Workshop will be held on March 25, 2020, at FHI 360 in Washington, D.C. Register below.
March 25, 2020
The workshop will serve as a forum for patients, providers, advocacy organizations and other stakeholders to engage in a dialogue around issues regarding hereditary conditions, somatic mutations and biomarkers. Attendees will leave with a better understanding of the role these factors play in prevention and early detection and solutions to improve patient awareness and engagement.
9:30 am | Registration opens
10:30 am | Welcome
10:35 am | Overview
10:40 am | Genetics/Genomics 101
This primer will give attendees the background needed to understand the components of genetics and what it means for cancer patients.
11:15 am | Access Barriers and Challenges Impacting Genetic Testing and Biomarker Profiling
Moderator: Lisa Schlager, Vice President, Public Policy, Facing Our Risk of Cancer Empowered
As innovation in genetics has led to major breakthroughs in screenings, patients can learn so much about their genetic profile and cancer type. However, these screenings are not available or understandable to all. Panelists will discuss pressing concerns regarding hereditary cancers, tumor profiling and biomarkers and the practical impact they have on patients.
12:30pm | Lunch Keynote
Brandi Preston, Founder, Kamie K. Preston Hereditary Cancer Foundation
Brandi was diagnosed with a BRCA1 mutation when she was only 19 years old, leading to her decision to have a double mastectomy at 22. Brandi will share the story of her mother, Kamie, who inspired her choice to get tested and ultimately start the Foundation in her honor.
1:15 pm | Breakouts
Attendees will break out into groups to discuss concerns addressed by the speakers, brainstorm ideas and propose solutions.
2:15 pm | Report outs
Breakout groups will return to present their proposed solutions to the rest of the attendees.
2:45 pm | Building a consensus
Based off feedback from the breakout groups, attendees will discuss the solutions and come to a consensus on a priority issue on which to focus our collective efforts.
3:15 pm | Recap and next steps
3:30 pm | Adjourn
April 24, 2019
Hilton Crystal City
The Prevent Cancer Advocacy Workshop is an annual conference that convenes stakeholders to discuss pressing issues that impact cancer prevention and early detection, as well as novel approaches to address these issues through policy and advocacy. The Workshop is an open forum that allows participants to immerse themselves in engaging presentations and facilitated conversations, and to build capacity for creative solutions through collaboration with other attendees.
Wednesday, April 24, 2019
9:30 am | Registration Opens
10:30 am | Welcome — Jody Hoyos, Senior Vice President, Prevent Cancer Foundation
10:35 am | Overview — Lisa Berry Edwards, Managing Director, External Affairs, Prevent Cancer Foundation
10:45 am | Keynote — Inside the Case Against Big Tobacco
Speaker: Sharon Eubanks, Lead Counsel, United States v. Phillip Morris USA
11:30 am | Access Barriers in Care Delivery
Panelists will discuss emerging barriers to care and potential solutions to increase access to patients, such as step therapy, co-pay accumulators, Medicaid waivers, and more.
Chad Ramsey – Vice President of Policy, Ovarian Cancer Research Alliance
Lindsay Houff – Senior Policy Manager – National Coalition for Cancer Survivorship
Anna Hyde – Vice President of Advocacy and Access, Arthritis Foundation
Kristen Santiago – Senior Director of Public Policy Initiatives, LUNGevity
12:30 pm | Networking Lunch
1:30 pm | The Economics of Prevention
Listen to a facilitated conversation focusing on factors contributing to the rising cost of health care and ways in which prevention can offset those costs to reduce the burden on patients and the health care system.
Jim Mulshine, Vice President and Associate Provost for Research at Rush University Medical Center
Bruce Pyenson, Principle and Consulting Actuary, Milliman, Inc.
2:30pm | Prevent Cancer Advocacy Toolkit
Taylor Patton – Director, Policy and Advocacy, Prevent Cancer Foundation
2:45pm | Workshop Recap and Next Steps
3:00pm | Adjourn
The Foundation held its annual Advocacy Workshop on Wednesday April 11, 2018, where participants heard from advocates, policy experts, patient navigators and researchers about the issues barring minorities and other underserved populations from accessing quality health education and care.
Panelists addressed issues facing these communities, not just for those affected by cancer, but for those affected by chronic conditions like diabetes, heart disease and arthritis. The panelists see many of the same issues affecting health disparities, such as access to transportation, child care and other resources that patients need to get to appointments. They also discussed a need for better patient-provider communication and called on insurers to help patients understand their coverage.
View keynote address slide presentation: Culturally Tailored Approaches to Address Health Inequities and Disparities: The Racial and Ethnic Approaches to Community Health (REACH) Initiative – April Bankston, Senior Public Health Advisor, Division of Nutrition, Physical Activity, and Obesity, CDC
Welcome and Opening Remarks
Carolyn Aldigé, President and Founder, Prevent Cancer Foundation
Taylor Patton, Director, Advocacy and Policy, Prevent Cancer Foundation
Panel 1: Health Disparities in Chronic Disease Prevention
Deanna Darlington, Director, Patient Advocacy and Allied Development, Amgen
LaShawn McIver, Senior Vice President, Government Affairs & Advocacy – American Diabetes Association
Jennifer Jabson, Assistant Professor, University of Tennesee – Knoxville
Elizabeth Glidden, Patient Navigator, American Cancer Society, Northeast Region
April Bankston, Team Lead, Racial and Ethnic Approaches to Community Health (REACH) Program, Centers for Disease Control and Prevention
Panel 2: Policy Solutions to Address Threats in Chronic Disease Prevention
Jack Rayburn, Senior Government Relations Manager, Trust for America’s Health
Elizabeth Franklin, Executive Director, Cancer Policy Institute, Cancer Support Community
Anna Hyde, Vice President, Advocacy and Access, Arthritis Foundation
Katie Berge, Government Relations Manager, American Heart Association